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Prevalence and Incidence of Adrenal hypoplasia congenital, X-linked

Prevalance of Adrenal hypoplasia congenital, X-linked:

1 per 12,500 newborns suffer from adrenal hypoplasia congenita in the US, Genetics Home Reference website ... see also overview of Adrenal hypoplasia congenital, X-linked.

Prevalance Rate:

approx 1 in 12,500 or 0.01% or 21,760 people in USA [Source statistic for calcuation: "1 per 12,500 newborns suffer from adrenal hypoplasia congenita in the US, Genetics Home Reference website" -- see also general information about data sources]

Adrenal hypoplasia congenital, X-linked: Rare Disease

Adrenal hypoplasia congenital, X-linked is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Adrenal hypoplasia congenital, X-linked, or a subtype of Adrenal hypoplasia congenital, X-linked, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Adrenal hypoplasia congenital, X-linked as a "rare disease". More information about Adrenal hypoplasia congenital, X-linked is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Adrenal hypoplasia congenital, X-linked usually refers to the estimated population of people who are managing Adrenal hypoplasia congenital, X-linked at any given time. The term 'incidence' of Adrenal hypoplasia congenital, X-linked refers to the annual diagnosis rate, or the number of new cases of Adrenal hypoplasia congenital, X-linked diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

 

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