Prevalence and Incidence of Adrenal hypoplasia congenital, X-linked
Prevalance of Adrenal hypoplasia congenital, X-linked:
1 per 12,500 newborns suffer from adrenal hypoplasia congenita in the US, Genetics Home Reference website ... see also overview of Adrenal hypoplasia congenital, X-linked.
Prevalance Rate:
approx 1 in 12,500 or 0.01% or 21,760 people in USA [Source statistic for calcuation: "1 per 12,500 newborns suffer from adrenal hypoplasia congenita in the US, Genetics Home Reference website" -- see also general information about data sources]
Adrenal hypoplasia congenital, X-linked: Rare Disease
Adrenal hypoplasia congenital, X-linked is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Adrenal hypoplasia congenital, X-linked, or a subtype of Adrenal hypoplasia congenital, X-linked,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Adrenal hypoplasia congenital, X-linked as a "rare disease".
More information about Adrenal hypoplasia congenital, X-linked is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of Adrenal hypoplasia congenital, X-linked usually refers to the estimated population
of people who are managing Adrenal hypoplasia congenital, X-linked at any given time.
The term 'incidence' of Adrenal hypoplasia congenital, X-linked refers to the annual diagnosis rate,
or the number of new cases of Adrenal hypoplasia congenital, X-linked diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.