Prevalence and Incidence of Aicardi syndrome

Prevalance of Aicardi syndrome:

rare ... see also overview of Aicardi syndrome.

Aicardi syndrome: Rare Disease

Aicardi syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Aicardi syndrome, or a subtype of Aicardi syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Aicardi syndrome as a "rare disease". More information about Aicardi syndrome is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Aicardi syndrome usually refers to the estimated population of people who are managing Aicardi syndrome at any given time. The term 'incidence' of Aicardi syndrome refers to the annual diagnosis rate, or the number of new cases of Aicardi syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

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