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Diseases » Alport Syndrome » Prevalence
 

Prevalence and Incidence of Alport Syndrome

Prevalance of Alport Syndrome:

1 per 50,000 newborns suffer from Alport syndrome, Genetics Home Reference website ... see also overview of Alport Syndrome.

Prevalance Rate:

approx 1 in 50,000 or 0.00% or 5,440 people in USA [Source statistic for calcuation: "1 per 50,000 newborns suffer from Alport syndrome, Genetics Home Reference website" -- see also general information about data sources]

Alport Syndrome: Rare Disease

Alport Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Alport Syndrome, or a subtype of Alport Syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Alport Syndrome as a "rare disease". More information about Alport Syndrome is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Alport Syndrome usually refers to the estimated population of people who are managing Alport Syndrome at any given time. The term 'incidence' of Alport Syndrome refers to the annual diagnosis rate, or the number of new cases of Alport Syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

 

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