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Prevalence and Incidence of Atypical hemolytic uremic syndrome

Atypical hemolytic uremic syndrome: Rare Disease

Atypical hemolytic uremic syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Atypical hemolytic uremic syndrome, or a subtype of Atypical hemolytic uremic syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Atypical hemolytic uremic syndrome as a "rare disease". More information about Atypical hemolytic uremic syndrome is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Atypical hemolytic uremic syndrome usually refers to the estimated population of people who are managing Atypical hemolytic uremic syndrome at any given time. The term 'incidence' of Atypical hemolytic uremic syndrome refers to the annual diagnosis rate, or the number of new cases of Atypical hemolytic uremic syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

 

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