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Diseases » Cystic Fibrosis » Stats
 

Statistics about Cystic Fibrosis

Prevalence and incidence statistics for Cystic Fibrosis:

See also prevalence and incidence page for Cystic Fibrosis

Prevalance of Cystic Fibrosis: 1 per 31,000 Asian American newborns suffer from cystic fibrosis in the US, genetics Home Reference website

Prevalance Rate: approx 1 in 31,000 or 0.00% or 8,774 people in USA [about data]

Incidence (annual) of Cystic Fibrosis: 2,500 babies annually USA; 1 in 3,000 Caucasian babies

Incidence Rate: approx 1 in 108,800 or 0.00% or 2,500 people in USA [about data]

Incidence extrapolations for USA for Cystic Fibrosis: 2,500 per year, 208 per month, 48 per week, 6 per day, 0 per hour, 0 per minute, 0 per second. Note: this extrapolation calculation uses the incidence statistic: 2,500 babies annually USA; 1 in 3,000 Caucasian babies

Prevalance of Cystic Fibrosis: Every year, 1,000 children with cystic fibrosis (CF) are born in the United States. One in 3,000 Caucasian babies have the disorder, making CF one of the most common lethal genetic diseases in Caucasians. Overall, there are 30,000 Americans with CF, and an estimated 8 million people carry one copy of the defective gene that causes the disease. (Source: excerpt from Cystic Fibrosis Research Directions: NIDDK)

Prevelance statistics about Cystic Fibrosis:

The following statistics relate to the prevalence of Cystic Fibrosis:

  • 8 million genetic carriers in USA (NIDDK)
  • About 30,000 people with cystic fibrosis ("Orphan Products: Hope for People With Rare Diseases", By Carol Rados, FDA Consumer magazine, November-December 2003 Issue)
  • more about prevalence...»

Cystic Fibrosis: Rare Disease Status

Cystic Fibrosis is listed as a "rare disease" by the Office of Rare Diseases (ORD)...more »

Cystic Fibrosis: Rare Disease Status

Cystic Fibrosis is listed as a "rare disease" by Ophanet, a consortium of European partners ...more »

Death and mortality statistics for Cystic Fibrosis:

Deaths from Cystic Fibrosis: 485 deaths (NHLBI 1999)

Death rate extrapolations for USA for Cystic Fibrosis: 484 per year, 40 per month, 9 per week, 1 per day, 0 per hour, 0 per minute, 0 per second. Note: this extrapolation calculation uses the deaths statistic: 485 deaths (NHLBI 1999)

Death statistics for Cystic Fibrosis:

The following are statistics from various sources about deaths and Cystic Fibrosis:

  • 45 people died from cystic fibrosis in Australia 2000 (Australia’s Health 2004, AIHW)
  • more about deaths...»

Deaths from Cystic Fibrosis

Lung disease is the usual cause of death in most patients. (Source: excerpt from NHLBI, Facts About Cystic Fibrosis: NHLBI)

Society statistics for Cystic Fibrosis

  Hospitalizations for Cystic Fibrosis: 12,000 (NHLBI 1999)

Hospitalization statistics for Cystic Fibrosis:

The following are statistics from various sources about hospitalizations and Cystic Fibrosis:

  • 0.07% (9,211) of hospital consultant episodes were for cystic fibrosis in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 96% of hospital consultant episodes for cystic fibrosis required hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 49% of hospital consultant episodes for cystic fibrosis were men in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 51% of hospital consultant episodes for cystic fibrosis were women in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 42% of hospital consultant episodes for cystic fibrosis required emergency hospital admission in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 8.7 days was the mean length of stay in hospitals for cystic fibrosis in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 7 days was the median length of stay in hospitals for cystic fibrosis in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 16 was the mean age of patients hospitalised for cystic fibrosis in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 51% of hospital consultant episodes for cystic fibrosis occurred in 15-59 year olds in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 0% of hospital consultant episodes for cystic fibrosis occurred in people over 75 in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 25% of hospital consultant episodes for cystic fibrosis were single day episodes in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)
  • 0.11% (55,516) of hospital bed days were for cystic fibrosis in England 2002-03 (Hospital Episode Statistics, Department of Health, England, 2002-03)

About statistics:

This page presents a variety of statistics about Cystic Fibrosis. The term 'prevalence' of Cystic Fibrosis usually refers to the estimated population of people who are managing Cystic Fibrosis at any given time. The term 'incidence' of Cystic Fibrosis refers to the annual diagnosis rate, or the number of new cases of Cystic Fibrosis diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

 

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