Prevalence and Incidence of Cutis laxa

Cutis laxa: Rare Disease

Cutis laxa is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Cutis laxa, or a subtype of Cutis laxa, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Cutis laxa as a "rare disease". More information about Cutis laxa is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Cutis laxa usually refers to the estimated population of people who are managing Cutis laxa at any given time. The term 'incidence' of Cutis laxa refers to the annual diagnosis rate, or the number of new cases of Cutis laxa diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

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