Diseases » Epidermolysis bullosa » Introduction

Epidermolysis bullosa

Epidermolysis bullosa: Introduction

A group of rare inherited noninflammatory skin diseases where the top dermal layer of the skin is loosely attached causing vesicles and bullae to form readily where even a minor skin injury or trauma occurs. Vesicles and bullae are thin-walled blisters that occur on the skin or mucous membranes and are filled with clear fluid. ...more »

Symptoms of Epidermolysis bullosa

• Skin blistering
• Gastrointestinal problems
• Pulmonary problems
• Muscle problems
• Bladder problems
• more symptoms...»

See full list of 8 symptoms of Epidermolysis bullosa

Wrongly Diagnosed with Epidermolysis bullosa?

• Misdiagnosis of Epidermolysis bullosa
• Failure to diagnose Epidermolysis bullosa
• Hidden causes of Epidermolysis bullosa (possibly wrongly diagnosed)
• Undiagnosed: Epidermolysis bullosa

Epidermolysis bullosa: Related Patient Stories

• Epidermolysis Bullosa!!!

Epidermolysis bullosa: Complications

Review possible medical complications related to Epidermolysis bullosa:

• Early death (type of Death) - in some cases
• Infection
• Scarring
• Damage to underlying muscle
• Contractures
• more complications...»

Causes of Epidermolysis bullosa

Read more about causes of Epidermolysis bullosa.

More information about causes of Epidermolysis bullosa:

• Epidermolysis bullosa as a symptom

Disease Topics Related To Epidermolysis bullosa

Research the causes of these diseases that are similar to, or related to, Epidermolysis bullosa:

• Epidermolysis bullosa simplex with migratory circinate erythema
• Epidermolysis bullosa simplex with mottled pigmentation
• Epidermolysis simplex Koebner type
• Mitis junctional epidermolysis bullosa
• Generalised atrophic benign epidermolysis bullosa
• Cicatricial epidermolysis bullosa with pyloric atresia
• more related diseases...»

Misdiagnosis and Epidermolysis bullosa

Psoriasis often undiagnosed cause of skin symptoms in children: Children who suffer from the skin disorder called psoriasis can often go undiagnosed. The main problem is...read more »

Read more about Misdiagnosis and Epidermolysis bullosa

Epidermolysis bullosa: Research Doctors & Specialists

Research related physicians and medical specialists:

• Skin Health Specialists (Dermatology):
  • Dermatology (Skin Health Specialists)
  • Dermatopathology
  • Pediatric Dermatology (Child Skin Health)
  • Dermatological Immunology / Diagnostic Laboratory (Skin Allergies)
• more specialists...»

Other doctor, physician and specialist research services:

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• Research local specialists including ratings, affiliations, and sanctions.

Evidence Based Medicine Research for Epidermolysis bullosa

Medical research articles related to Epidermolysis bullosa include:

• Providing care for patients with skin conditions - guidance and resources for commissioners
• For a woman with epidermolysis bullosa what contraceptive options are there?
• Apligraf for burn injuries (update)
• Bullous Dermatoses (Blisters and Bullae)
• Staphylococcal Scalded Skin Syndrome (Overview)
• Cicatricial Pemphigoid (Treatment)
• Epidermolysis Bullosa (Overview)
• more research...»

Click here to find more evidence-based articles on the TRIP Database

Epidermolysis bullosa: Animations

More Epidermolysis bullosa animations & videos

Prognosis for Epidermolysis bullosa

Prognosis for Epidermolysis bullosa: This disorder can be both disabling and disfiguring, and some forms may lead to early death. (Source: excerpt from Questions and Answers about Heritable Disorders of Connective Tissue: NIAMS)

More about prognosis of Epidermolysis bullosa

Research about Epidermolysis bullosa

Visit our research pages for current research about Epidermolysis bullosa treatments.

Clinical Trials for Epidermolysis bullosa

The US based website ClinicalTrials.gov lists information on both federally and privately supported clinical trials using human volunteers.

Some of the clinical trials listed on ClinicalTrials.gov for Epidermolysis bullosa include:

• Phase II Pilot Study of Extracorporeal Phototherapy for Epidermolysis Bullosa Acquisita - This study has been completed (Current: 23 Nov 2006) - methoxsalen
• Establishment of the National Epidermolysis Bullosa Registry - This study has been completed (Current: 23 Nov 2006)
• Study of the Nutritional, Metabolic, and Body Composition Profile in Children and Adolescents With Epidermolysis Bullosa - This study has been completed (Current: 23 Nov 2006)
• Phase I Study of Isotretinoin in Patients With Recessive Dystrophic Epidermolysis Bullosa - This study is no longer recruiting patients (Current: 23 Nov 2006) - isotretinoin
• Effect of Thymosin Beta 4 on Wound Healing in Patients With Epidermolysis Bullosa - This study is currently recruiting patients (Current: 23 Nov 2006) - Thymosin Beta 4
• more trials...»

See full list of 7 Clinical Trials for Epidermolysis bullosa

Epidermolysis bullosa: Broader Related Topics

• Connective tissue disorders
• Heritable Disorders of Connective Tissue
• Genetic Disease
• Skin conditions
• more types...»

Types of Epidermolysis bullosa

Epidermolysis bullosa Message Boards

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User Interactive Forums

Read about other experiences, ask a question about Epidermolysis bullosa, or answer someone else's question, on our message boards:

• I can not get a diagnosis. Please help.
• Tell us your medical story.
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• What is the best treatment for this?
• See all the forums.

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