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Prevalence and Incidence of Hypoplastic Left Heart Syndrome

Hypoplastic Left Heart Syndrome: Rare Disease

Hypoplastic Left Heart Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Hypoplastic Left Heart Syndrome, or a subtype of Hypoplastic Left Heart Syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Hypoplastic Left Heart Syndrome as a "rare disease". More information about Hypoplastic Left Heart Syndrome is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Hypoplastic Left Heart Syndrome usually refers to the estimated population of people who are managing Hypoplastic Left Heart Syndrome at any given time. The term 'incidence' of Hypoplastic Left Heart Syndrome refers to the annual diagnosis rate, or the number of new cases of Hypoplastic Left Heart Syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

 

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