Kaposiform hemangio-endothelioma: A rare blood vessel tumor that occur primarily in children. It causes localized damage but is not metastatic. Main sites affected are the retroperitoneum and skin but can also occur in the head and neck area, mediastinum and deep soft tissue of the trunk and limbs. Symptoms and prognosis is determined by the size and location of the tumors. More detailed information about the symptoms, causes, and treatments of Kaposiform hemangio-endothelioma is available below.
See full list of 6 symptoms of Kaposiform hemangio-endothelioma
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Kaposiform hemangio-endothelioma is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Kaposiform hemangio-endothelioma, or a subtype of Kaposiform hemangio-endothelioma,
affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)
Ophanet, a consortium of European partners,
currently defines a condition rare when it affects 1 person per 2,000.
They list Kaposiform hemangio-endothelioma as a "rare disease".
Source - Orphanet
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