Prevalence and Incidence of Menkes Disease
Prevalance of Menkes Disease:
estimated 1 per 100,000 people suffer Menkes syndrome, Genetics Home Reference website ... see also overview of Menkes Disease.
approx 1 in 100,000 or 0.00% or 2,720 people in USA [Source statistic for calcuation: "estimated 1 per 100,000 people suffer Menkes syndrome, Genetics Home Reference website" -- see also general information about data sources]
Menkes Disease: Rare Disease
Menkes Disease is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Menkes Disease, or a subtype of Menkes Disease,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Menkes Disease as a "rare disease".
More information about Menkes Disease is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of Menkes Disease usually refers to the estimated population
of people who are managing Menkes Disease at any given time.
The term 'incidence' of Menkes Disease refers to the annual diagnosis rate,
or the number of new cases of Menkes Disease diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.
» Next page: Prognosis of Menkes Disease
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