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Prevalence and Incidence of Mucopolysaccharidosis type I Hurler-Scheie syndrome

Prevalance of Mucopolysaccharidosis type I Hurler-Scheie syndrome:

about 200 people ("Orphan Products: Hope for People With Rare Diseases", By Carol Rados, FDA Consumer magazine, November-December 2003 Issue) ... see also overview of Mucopolysaccharidosis type I Hurler-Scheie syndrome.

Prevalance Rate:

approx 1 in 1,360,000 or 0.00% or 200 people in USA [Source statistic for calcuation: "about 200 people ("Orphan Products: Hope for People With Rare Diseases", By Carol Rados, FDA Consumer magazine, November-December 2003 Issue)" -- see also general information about data sources]

Mucopolysaccharidosis type I Hurler-Scheie syndrome: Rare Disease

Mucopolysaccharidosis type I Hurler-Scheie syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Mucopolysaccharidosis type I Hurler-Scheie syndrome, or a subtype of Mucopolysaccharidosis type I Hurler-Scheie syndrome, affects less than 200,000 people in the US population.

About prevalence and incidence statistics:

The term 'prevalence' of Mucopolysaccharidosis type I Hurler-Scheie syndrome usually refers to the estimated population of people who are managing Mucopolysaccharidosis type I Hurler-Scheie syndrome at any given time. The term 'incidence' of Mucopolysaccharidosis type I Hurler-Scheie syndrome refers to the annual diagnosis rate, or the number of new cases of Mucopolysaccharidosis type I Hurler-Scheie syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

 

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