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Parry Romberg Syndrome

Parry Romberg Syndrome: Introduction

Parry Romberg Syndrome: Parry-Romberg syndrome is a rare disorder characterized by atrophy (wasting away) of the tissue on one side of the face. The atrophy may also ... more about Parry Romberg Syndrome.

Parry Romberg Syndrome: Wasting away of one side of the face. More detailed information about the symptoms, causes, and treatments of Parry Romberg Syndrome is available below.

Symptoms of Parry Romberg Syndrome

Treatments for Parry Romberg Syndrome

Parry Romberg Syndrome: Related Patient Stories

Parry Romberg Syndrome: Complications

Read more about complications of Parry Romberg Syndrome.

Causes of Parry Romberg Syndrome

Read more about causes of Parry Romberg Syndrome.

Disease Topics Related To Parry Romberg Syndrome

Research the causes of these diseases that are similar to, or related to, Parry Romberg Syndrome:

Parry Romberg Syndrome: Research Doctors & Specialists

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Prognosis for Parry Romberg Syndrome

Prognosis for Parry Romberg Syndrome: condition usually progresses for a while then remains static indefinitely

Statistics for Parry Romberg Syndrome

Parry Romberg Syndrome: Broader Related Topics

Parry Romberg Syndrome Message Boards

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User Interactive Forums

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Article Excerpts about Parry Romberg Syndrome

Parry-Romberg syndrome is a rare disorder characterized by atrophy (wasting away) of the tissue on one side of the face. The atrophy may also affect the tongue, soft palate, and mucous membranes of the gums. Muscle and bones are rarely affected. (Source: excerpt from NINDS Parry Romberg Syndrome Information Page: NINDS)

Definitions of Parry Romberg Syndrome:

A syndrome characterized by slowly progressive unilateral atrophy of facial subcutaneous fat, muscle tissue, skin, cartilage, and bone. The condition typically progresses over a period of 2-10 years and then stabilizes. - (Source - Diseases Database)

Parry Romberg Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Parry Romberg Syndrome, or a subtype of Parry Romberg Syndrome, affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)

Ophanet, a consortium of European partners, currently defines a condition rare when it affects 1 person per 2,000. They list Parry Romberg Syndrome as a "rare disease".
Source - Orphanet

 

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