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POEMS syndrome

POEMS syndrome: Introduction

POEMS syndrome: A very rare disorder that has widespread effects on the body: P - polyneuropathy, O - organopathy, E - endocrinopathy, M - monoclonal gammopathy, S - skin changes. More detailed information about the symptoms, causes, and treatments of POEMS syndrome is available below.

Symptoms of POEMS syndrome

Wrongly Diagnosed with POEMS syndrome?

POEMS syndrome: Related Patient Stories

POEMS syndrome: Deaths

Read more about Deaths and POEMS syndrome.

POEMS syndrome: Complications

Read more about complications of POEMS syndrome.

Causes of POEMS syndrome

Read more about causes of POEMS syndrome.

Disease Topics Related To POEMS syndrome

Research the causes of these diseases that are similar to, or related to, POEMS syndrome:

Misdiagnosis and POEMS syndrome

Psoriasis often undiagnosed cause of skin symptoms in children: Children who suffer from the skin disorder called psoriasis can often go undiagnosed. The main problem is that psoriasis is rare in children...read more »

POEMS syndrome: Research Doctors & Specialists

Research related physicians and medical specialists:

Other doctor, physician and specialist research services:

Evidence Based Medicine Research for POEMS syndrome

Medical research articles related to POEMS syndrome include:

Click here to find more evidence-based articles on the TRIP Database

POEMS syndrome: Animations

Research about POEMS syndrome

Visit our research pages for current research about POEMS syndrome treatments.

Statistics for POEMS syndrome

POEMS syndrome: Broader Related Topics

User Interactive Forums

Read about other experiences, ask a question about POEMS syndrome, or answer someone else's question, on our message boards:

Definitions of POEMS syndrome:

A multisystemic disorder characterized by a sensorimotor polyneuropathy (POLYNEUROPATHIES), organomegaly, endocrinopathy, monoclonal gammopathy, and pigmentary skin changes. Other clinical features which may be present include EDEMA; CACHEXIA; microangiopathic glomerulopathy; pulmonary hypertension (HYPERTENSION, PULMONARY); cutaneous necrosis; THROMBOCYTOSIS; and POLYCYTHEMIA. This disorder is frequently associated with osteosclerotic myeloma. (From Adams et al., Principles of Neurology, 6th ed, p1335; Rev Med Interne 1997;18(7):553-62) - (Source - Diseases Database)

POEMS syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that POEMS syndrome, or a subtype of POEMS syndrome, affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)

Ophanet, a consortium of European partners, currently defines a condition rare when it affects 1 person per 2,000. They list POEMS syndrome as a "rare disease".
Source - Orphanet

 

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