Prevalence and Incidence of Porphyria
Porphyria: Rare Disease
Porphyria is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Porphyria, or a subtype of Porphyria,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Porphyria as a "rare disease".
More information about Porphyria is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of Porphyria usually refers to the estimated population
of people who are managing Porphyria at any given time.
The term 'incidence' of Porphyria refers to the annual diagnosis rate,
or the number of new cases of Porphyria diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.
» Next page: Videos related to Porphyria
Medical Tools & Articles:
Tools & Services:
Forums & Message Boards
- Ask or answer a question at the Boards: