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Pycnodysostosis is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Pycnodysostosis, or a subtype of Pycnodysostosis, affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Pycnodysostosis as a "rare disease". More information about Pycnodysostosis is available from Orphanet
The term 'prevalence' of Pycnodysostosis usually refers to the estimated population
of people who are managing Pycnodysostosis at any given time.
The term 'incidence' of Pycnodysostosis refers to the annual diagnosis rate,
or the number of new cases of Pycnodysostosis diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.
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