Statistics by Country for Rare diseases

Prevalance of Rare diseases:

about 25 million Americans (ORD); each disease less than 200,000 Americans by definition.

Prevalance Rate for Rare diseases:

approx 1 in 10 or 9.19% or 25 million people in USA [about data]

Extrapolation of Prevalence Rate of Rare diseases to Countries and Regions:

WARNING! EXTRAPOLATION ONLY! NOT BASED ON COUNTRY-SPECIFIC DATA SOURCES. The following table attempts to extrapolate the above prevalence rate for Rare diseases to the populations of various countries and regions. These prevalence extrapolations for Rare diseases are only estimates, based on applying the prevalence rates from the US (or a similar country) to the population of other countries, and therefore may have very limited relevance to the actual prevalence of Rare diseases in any region:

Incidence (annual) of Rare diseases:

Less than 200,000 people in the USA by the definition of "rare disease" (in many cases much less)

Incidence Rate for Rare diseases: approx 1 in 1,359 or 0.07% or 200,000 people in USA [about data] Extrapolation of Incidence Rate for Rare diseases to Countries and Regions: WARNING! EXTRAPOLATION ONLY. NOT BASED ON COUNTRY-SPECIFIC DATA SOURCES. The following table attempts to extrapolate the above incidence rate for Rare diseases to the populations of various countries and regions. As discussed above, these incidence extrapolations for Rare diseases are only estimates and may have very limited relevance to the actual incidence of Rare diseases in any region:

About extrapolations of prevalence and incidence statistics for Rare diseases:

WARNING! EXTRAPOLATED STATISTICS ONLY! Not based on data sources from individual countries. These statistics are calculated extrapolations of various prevalence or incidence rates against the populations of a particular country or region. The statistics used for prevalence/incidence of Rare diseases are typically based on US, UK, Canadian or Australian prevalence or incidence statistics, which are then extrapolated using only the population of the other country. This extrapolation calculation is automated and does not take into account any genetic, cultural, environmental, social, racial or other differences across the various countries and regions for which the extrapolated Rare diseases statistics below refer to. The extrapolation does not use data sources or statistics about any country other than its population. As such, these extrapolations may be highly inaccurate (especially for developing or third-world countries) and only give a general indication (or even a meaningless indication) as to the actual prevalence or incidence of Rare diseases in that region. These statistics are presented only in the hope that they may be interesting to some people.

About prevalence and incidence statistics in general for Rare diseases:

The word 'prevalence' of Rare diseases usually means the estimated population of people who are managing Rare diseases at any given time (i.e. people with Rare diseases). The term 'incidence' of Rare diseases means the annual diagnosis rate, or the number of new cases of Rare diseases diagnosed each year (i.e. getting Rare diseases). Hence, these two statistics types can differ: a short disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

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