Prevalence and Incidence of Rett's syndrome

Prevalance of Rett's syndrome:

estimated 1 per 10,000 - 22,000 females suffer from Rett syndrome, Genetics Home Reference website ... see also overview of Rett's syndrome.

Prevalance Rate:

approx 1 in 10,000 or 0.01% or 27,200 people in USA [Source statistic for calcuation: "estimated 1 per 10,000 - 22,000 females suffer from Rett syndrome, Genetics Home Reference website" -- see also general information about data sources]

Rett's syndrome: Rare Disease

Rett's syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Rett's syndrome, or a subtype of Rett's syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Rett's syndrome as a "rare disease". More information about Rett's syndrome is available from Orphanet

Incidence (annual) of Rett's syndrome:

1 in 10,000-15,000 live female births ... see also overview of Rett's syndrome.

Incidence Rate:

approx 1 in 10,000 or 0.01% or 27,200 people in USA [Source statistic for calcuation: "1 in 10,000-15,000 live female births" -- see also general information about data sources]

Incidence extrapolations for USA for Rett's syndrome:

27,199 per year, 2,266 per month, 523 per week, 74 per day, 3 per hour, 0 per minute, 0 per second. [Source statistic for calculation: "1 in 10,000-15,000 live female births" -- see also general information about data sources]

Prevalance of Rett's syndrome:

The syndrome affects approximately 1 in every 10,000-15,000 live female births, with symptoms usually appearing in early childhood — between ages 6 and 18 months. (Source: excerpt from NINDS Rett Syndrome Information Page: NINDS)

More Statistics about Rett's syndrome:

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