Prevalence and Incidence of SAPHO syndrome
SAPHO syndrome: Rare Disease
SAPHO syndrome is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that SAPHO syndrome, or a subtype of SAPHO syndrome,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list SAPHO syndrome as a "rare disease".
More information about SAPHO syndrome is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of SAPHO syndrome usually refers to the estimated population
of people who are managing SAPHO syndrome at any given time.
The term 'incidence' of SAPHO syndrome refers to the annual diagnosis rate,
or the number of new cases of SAPHO syndrome diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.