Prevalence and Incidence of Soto's Syndrome

Prevalance of Soto's Syndrome:

rare ... see also overview of Soto's Syndrome.

Soto's Syndrome: Rare Disease

Soto's Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Soto's Syndrome, or a subtype of Soto's Syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Soto's Syndrome as a "rare disease". More information about Soto's Syndrome is available from Orphanet

Incidence (annual) of Soto's Syndrome:

estimated 1 per 5,000 newborns have Sotos syndrome which includes reported cases and undiagnosed cases, Genetics Home Reference website ... see also overview of Soto's Syndrome.

Incidence Rate:

approx 1 in 5,000 or 0.02% or 54,400 people in USA [Source statistic for calcuation: "estimated 1 per 5,000 newborns have Sotos syndrome which includes reported cases and undiagnosed cases, Genetics Home Reference website" -- see also general information about data sources]

Incidence extrapolations for USA for Soto's Syndrome:

54,399 per year, 4,533 per month, 1,046 per week, 149 per day, 6 per hour, 0 per minute, 0 per second. [Source statistic for calculation: "estimated 1 per 5,000 newborns have Sotos syndrome which includes reported cases and undiagnosed cases, Genetics Home Reference website" -- see also general information about data sources]

About prevalence and incidence statistics:

The term 'prevalence' of Soto's Syndrome usually refers to the estimated population of people who are managing Soto's Syndrome at any given time. The term 'incidence' of Soto's Syndrome refers to the annual diagnosis rate, or the number of new cases of Soto's Syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

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