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Prevalence and Incidence of Torsion dystonia with onset in infancy

Torsion dystonia with onset in infancy: Rare Disease

Torsion dystonia with onset in infancy is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Torsion dystonia with onset in infancy, or a subtype of Torsion dystonia with onset in infancy, affects less than 200,000 people in the US population.

About prevalence and incidence statistics:

The term 'prevalence' of Torsion dystonia with onset in infancy usually refers to the estimated population of people who are managing Torsion dystonia with onset in infancy at any given time. The term 'incidence' of Torsion dystonia with onset in infancy refers to the annual diagnosis rate, or the number of new cases of Torsion dystonia with onset in infancy diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

 

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