Prevalence and Incidence of Tourette Syndrome

Prevalance of Tourette Syndrome:

estimated 1-10 per 1,000 children have Tourette syndrome, Genetics Home Reference website ... see also overview of Tourette Syndrome.

Prevalance Rate:

approx 1 in 1,000 or 0.10% or 272,000 people in USA [Source statistic for calcuation: "estimated 1-10 per 1,000 children have Tourette syndrome, Genetics Home Reference website" -- see also general information about data sources]

Tourette Syndrome: Rare Disease

Tourette Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Tourette Syndrome, or a subtype of Tourette Syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Tourette Syndrome as a "rare disease". More information about Tourette Syndrome is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Tourette Syndrome usually refers to the estimated population of people who are managing Tourette Syndrome at any given time. The term 'incidence' of Tourette Syndrome refers to the annual diagnosis rate, or the number of new cases of Tourette Syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

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