Prevalence and Incidence of Usher Syndrome
Prevalance of Usher Syndrome:
16,000 Americans ... see also overview of Usher Syndrome.
approx 1 in 17,000 or 0.01% or 16,000 people in USA [Source statistic for calcuation: "16,000 Americans" -- see also general information about data sources]
Prevalance of types of Usher Syndrome:
For details see prevalence of types of Usher Syndrome analysis; summary of available prevalence data:
Usher Syndrome: Rare Disease
Usher Syndrome is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Usher Syndrome, or a subtype of Usher Syndrome,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Usher Syndrome as a "rare disease".
More information about Usher Syndrome is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of Usher Syndrome usually refers to the estimated population
of people who are managing Usher Syndrome at any given time.
The term 'incidence' of Usher Syndrome refers to the annual diagnosis rate,
or the number of new cases of Usher Syndrome diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.