What is Von Willebrand disease?

What is Von Willebrand disease?

• Von Willebrand disease: A rare inherited blood coagulation disorder characterized by a deficiency or defect in plasma protein called the von Willebrand factor which leads to bleeding problems.

Von Willebrand disease is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Von Willebrand disease, or a subtype of Von Willebrand disease, affects less than 200,000 people in the US population.
Source - National Institutes of Health (NIH)

Ophanet, a consortium of European partners, currently defines a condition rare when it affects 1 person per 2,000. They list Von Willebrand disease as a "rare disease".
Source - Orphanet

Von Willebrand disease: Introduction

Types of Von Willebrand disease:

Broader types of Von Willebrand disease:

• Bleeding disorders
• Blood conditions
• Under-diagnosed conditions
• Genetic Disease
• Bleeding and coagulation conditions
• Congenital conditions
• Genetic conditions
• Congenital conditions - blood disorders
• more types...»

How many people get Von Willebrand disease?

Prevalance of Von Willebrand disease: estimated 3 million mostly undiagnosed
Prevalance Rate of Von Willebrand disease: approx 1 in 90 or 1.10% or 3 million people in USA [about data]
Undiagnosed prevalence of Von Willebrand disease: estimated 1 million undiagnosed US women with Von Willebrand disease
Undiagnosed prevalence rate of Von Willebrand disease: approx 1 in 272 or 0.37% or 1 million people in USA [about data]

Who gets Von Willebrand disease?

Gender Profile for Von Willebrand disease: affects men and women equally

How serious is Von Willebrand disease?

Prognosis of Von Willebrand disease: Can be treated effectively with medication.
Complications of Von Willebrand disease: see complications of Von Willebrand disease

What causes Von Willebrand disease?

Causes of Von Willebrand disease: see causes of Von Willebrand disease
Risk factors for Von Willebrand disease: see risk factors for Von Willebrand disease

What are the symptoms of Von Willebrand disease?

Symptoms of Von Willebrand disease: see symptoms of Von Willebrand disease

Complications of Von Willebrand disease: see complications of Von Willebrand disease

Can anyone else get Von Willebrand disease?

Contagion of genetic conditions: generally not; see details in contagion of genetic diseases.

Inheritance of genetic conditions: see details in inheritance of genetic diseases.

Von Willebrand disease: Testing

Diagnostic testing: see tests for Von Willebrand disease.

Misdiagnosis: see misdiagnosis and Von Willebrand disease.

How is it treated?

Treatments for Von Willebrand disease: see treatments for Von Willebrand disease
Research for Von Willebrand disease: see research for Von Willebrand disease

Organs Affected by Von Willebrand disease:

Organs and body systems related to Von Willebrand disease include:

• Blood

Name and Aliases of Von Willebrand disease

Main name of condition: Von Willebrand disease

Class of Condition for Von Willebrand disease: genetic

VWD, Von willebrand factor, deficiency, Willebrand disease

VWD, Von willebrand factor, deficiency
Source - Office of Rare Diseases (ORD) of the National Institutes of Health (NIH)

Von Willebrand disease: Related Conditions

Research the causes of these diseases that are similar to, or related to, Von Willebrand disease:

• Congenital bleeding disorder
• Intramuscular bleeding
• Hemarthrosis
• Bruising
• Menorrhagia
• Wound bleeding
• Excessive bleeding
• Wilms tumor
• Congenital heart disease
• Systemic lupus erythematosus
• Angiodysplasia
• Hypothyroidism

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