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Diseases » Adams Nance syndrome » Prevalence

Prevalence and Incidence of Adams Nance syndrome

Adams Nance syndrome: Rare Disease

Adams Nance syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Adams Nance syndrome, or a subtype of Adams Nance syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Adams Nance syndrome as a "rare disease". More information about Adams Nance syndrome is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Adams Nance syndrome usually refers to the estimated population of people who are managing Adams Nance syndrome at any given time. The term 'incidence' of Adams Nance syndrome refers to the annual diagnosis rate, or the number of new cases of Adams Nance syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.


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