Prevalence and Incidence of Clouston syndrome
Clouston syndrome: Rare Disease
Clouston syndrome is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Clouston syndrome, or a subtype of Clouston syndrome,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Clouston syndrome as a "rare disease".
More information about Clouston syndrome is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of Clouston syndrome usually refers to the estimated population
of people who are managing Clouston syndrome at any given time.
The term 'incidence' of Clouston syndrome refers to the annual diagnosis rate,
or the number of new cases of Clouston syndrome diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.