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Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Craniofacial dyssynostosis as a "rare disease". More information about Craniofacial dyssynostosis is available from Orphanet
The term 'prevalence' of Craniofacial dyssynostosis usually refers to the estimated population
of people who are managing Craniofacial dyssynostosis at any given time.
The term 'incidence' of Craniofacial dyssynostosis refers to the annual diagnosis rate,
or the number of new cases of Craniofacial dyssynostosis diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.
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