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Prevalence and Incidence of Facial ectodermal dysplasia

Facial ectodermal dysplasia: Rare Disease

Facial ectodermal dysplasia is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Facial ectodermal dysplasia, or a subtype of Facial ectodermal dysplasia, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Facial ectodermal dysplasia as a "rare disease". More information about Facial ectodermal dysplasia is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Facial ectodermal dysplasia usually refers to the estimated population of people who are managing Facial ectodermal dysplasia at any given time. The term 'incidence' of Facial ectodermal dysplasia refers to the annual diagnosis rate, or the number of new cases of Facial ectodermal dysplasia diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

 

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