Prevalence and Incidence of Fine-Lubinsky syndrome
Fine-Lubinsky syndrome: Rare Disease
Fine-Lubinsky syndrome is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Fine-Lubinsky syndrome, or a subtype of Fine-Lubinsky syndrome,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Fine-Lubinsky syndrome as a "rare disease".
More information about Fine-Lubinsky syndrome is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of Fine-Lubinsky syndrome usually refers to the estimated population
of people who are managing Fine-Lubinsky syndrome at any given time.
The term 'incidence' of Fine-Lubinsky syndrome refers to the annual diagnosis rate,
or the number of new cases of Fine-Lubinsky syndrome diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.