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Diseases » KBG Syndrome » Prevalence

Prevalence and Incidence of KBG Syndrome

KBG Syndrome: Rare Disease

KBG Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that KBG Syndrome, or a subtype of KBG Syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list KBG Syndrome as a "rare disease". More information about KBG Syndrome is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of KBG Syndrome usually refers to the estimated population of people who are managing KBG Syndrome at any given time. The term 'incidence' of KBG Syndrome refers to the annual diagnosis rate, or the number of new cases of KBG Syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.


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