Prevalence and Incidence of NAME syndrome
NAME syndrome: Rare Disease
NAME syndrome is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that NAME syndrome, or a subtype of NAME syndrome,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list NAME syndrome as a "rare disease".
More information about NAME syndrome is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of NAME syndrome usually refers to the estimated population
of people who are managing NAME syndrome at any given time.
The term 'incidence' of NAME syndrome refers to the annual diagnosis rate,
or the number of new cases of NAME syndrome diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.