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Statistics about Nemaline myopathy

Nemaline myopathy: Rare Disease Status

Nemaline myopathy is listed as a "rare disease" by the Office of Rare Diseases (ORD)...more »

Nemaline myopathy: Rare Disease Status

Nemaline myopathy is listed as a "rare disease" by Ophanet, a consortium of European partners ...more »

About statistics:

This page presents a variety of statistics about Nemaline myopathy. The term 'prevalence' of Nemaline myopathy usually refers to the estimated population of people who are managing Nemaline myopathy at any given time. The term 'incidence' of Nemaline myopathy refers to the annual diagnosis rate, or the number of new cases of Nemaline myopathy diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.

 

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