Prevalence and Incidence of Neurofibromatosis-1
Prevalance of Neurofibromatosis-1:
1 per 3,000 - 4,000 people suffer from neurofibromatosis type 1 worldwide, Genetics Home Reference website ... see also overview of Neurofibromatosis-1.
approx 1 in 3,000 or 0.03% or 90,666 people in USA [Source statistic for calcuation: "1 per 3,000 - 4,000 people suffer from neurofibromatosis type 1 worldwide, Genetics Home Reference website" -- see also general information about data sources]
Neurofibromatosis-1: Rare Disease
Neurofibromatosis-1 is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Neurofibromatosis-1, or a subtype of Neurofibromatosis-1,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Neurofibromatosis-1 as a "rare disease".
More information about Neurofibromatosis-1 is available from Orphanet
Prevelance statistics for Neurofibromatosis-1:
The following statistics relate to the prevalence of Neurofibromatosis-1:
- 4,000 people world wide have neurofibromatosis Type 1 (British Colombia Neurofibromatosis Foundation)
- more statistics...»
About prevalence and incidence statistics:
The term 'prevalence' of Neurofibromatosis-1 usually refers to the estimated population
of people who are managing Neurofibromatosis-1 at any given time.
The term 'incidence' of Neurofibromatosis-1 refers to the annual diagnosis rate,
or the number of new cases of Neurofibromatosis-1 diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.