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Diseases » Neurofibromatosis-1 » Prevalence

Prevalence and Incidence of Neurofibromatosis-1

Prevalance of Neurofibromatosis-1:

1 per 3,000 - 4,000 people suffer from neurofibromatosis type 1 worldwide, Genetics Home Reference website ... see also overview of Neurofibromatosis-1.

Prevalance Rate:

approx 1 in 3,000 or 0.03% or 90,666 people in USA [Source statistic for calcuation: "1 per 3,000 - 4,000 people suffer from neurofibromatosis type 1 worldwide, Genetics Home Reference website" -- see also general information about data sources]

Neurofibromatosis-1: Rare Disease

Neurofibromatosis-1 is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Neurofibromatosis-1, or a subtype of Neurofibromatosis-1, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Neurofibromatosis-1 as a "rare disease". More information about Neurofibromatosis-1 is available from Orphanet

Prevelance statistics for Neurofibromatosis-1:

The following statistics relate to the prevalence of Neurofibromatosis-1:

  • 4,000 people world wide have neurofibromatosis Type 1 (British Colombia Neurofibromatosis Foundation)
  • more statistics...»

About prevalence and incidence statistics:

The term 'prevalence' of Neurofibromatosis-1 usually refers to the estimated population of people who are managing Neurofibromatosis-1 at any given time. The term 'incidence' of Neurofibromatosis-1 refers to the annual diagnosis rate, or the number of new cases of Neurofibromatosis-1 diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.


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