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Prevalence and Incidence of Niemann-Pick disease, type C1

Niemann-Pick disease, type C1: Rare Disease

Niemann-Pick disease, type C1 is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Niemann-Pick disease, type C1, or a subtype of Niemann-Pick disease, type C1, affects less than 200,000 people in the US population.

About prevalence and incidence statistics:

The term 'prevalence' of Niemann-Pick disease, type C1 usually refers to the estimated population of people who are managing Niemann-Pick disease, type C1 at any given time. The term 'incidence' of Niemann-Pick disease, type C1 refers to the annual diagnosis rate, or the number of new cases of Niemann-Pick disease, type C1 diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.


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