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Diseases » Prader-Willi syndrome » Prevalence

Prevalence and Incidence of Prader-Willi syndrome

Prevalance of Prader-Willi syndrome:

estimated 1 per 10,000 - 25,000 people suffer from Prader-Willi syndrome, Genetics Home Reference website ... see also overview of Prader-Willi syndrome.

Prevalance Rate:

approx 1 in 10,000 or 0.01% or 27,200 people in USA [Source statistic for calcuation: "estimated 1 per 10,000 - 25,000 people suffer from Prader-Willi syndrome, Genetics Home Reference website" -- see also general information about data sources]

Prader-Willi syndrome: Rare Disease

Prader-Willi syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Prader-Willi syndrome, or a subtype of Prader-Willi syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Prader-Willi syndrome as a "rare disease". More information about Prader-Willi syndrome is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Prader-Willi syndrome usually refers to the estimated population of people who are managing Prader-Willi syndrome at any given time. The term 'incidence' of Prader-Willi syndrome refers to the annual diagnosis rate, or the number of new cases of Prader-Willi syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.


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