Prevalence and Incidence of Rapp-Hodgkin syndrome
Rapp-Hodgkin syndrome: Rare Disease
Rapp-Hodgkin syndrome is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Rapp-Hodgkin syndrome, or a subtype of Rapp-Hodgkin syndrome,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Rapp-Hodgkin syndrome as a "rare disease".
More information about Rapp-Hodgkin syndrome is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of Rapp-Hodgkin syndrome usually refers to the estimated population
of people who are managing Rapp-Hodgkin syndrome at any given time.
The term 'incidence' of Rapp-Hodgkin syndrome refers to the annual diagnosis rate,
or the number of new cases of Rapp-Hodgkin syndrome diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.