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Diseases » Sjogren's Syndrome » Prevalence

Prevalence and Incidence of Sjogren's Syndrome

Prevalance of Sjogren's Syndrome:

1 to 4 million people with Sjogren’s Syndrome (NIAMS) ... see also overview of Sjogren's Syndrome.

Prevalance Rate:

approx 1 in 272 or 0.37% or 1 million people in USA [Source statistic for calcuation: "1 to 4 million people with Sjogren’s Syndrome (NIAMS)" -- see also general information about data sources]

Sjogren's Syndrome: Rare Disease

Sjogren's Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Sjogren's Syndrome, or a subtype of Sjogren's Syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Sjogren's Syndrome as a "rare disease". More information about Sjogren's Syndrome is available from Orphanet

Undiagnosed prevalence of Sjogren's Syndrome:

estimated 2 million ... see also misdiagnosis of Sjogren's Syndrome.

Undiagnosed prevalence rate:

approx 1 in 136 or 0.74% or 2 million people in USA [about data] ... Note: this rate calculation uses the following statistic: estimated 2 million

Prevalance of Sjogren's Syndrome:

Experts believe 1 to 4 million people have the disease. (Source: excerpt from Questions and Answers About Sjögren's Syndrome: NIAMS)

Prevelance statistics for Sjogren's Syndrome:

The following statistics relate to the prevalence of Sjogren's Syndrome:

  • 90% of cases of Sjogren’s Syndrome occurs in women in the US (NIH, The National Women’s Health Centre, 2004)
  • 1 to 4 million cases of Sjogren’s Syndrome in the US (NIH, The National Women’s Health Centre, 2004)
  • Dry eye prevalence of about 10 million (some due to Sjogren's)
  • more statistics...»

About prevalence and incidence statistics:

The term 'prevalence' of Sjogren's Syndrome usually refers to the estimated population of people who are managing Sjogren's Syndrome at any given time. The term 'incidence' of Sjogren's Syndrome refers to the annual diagnosis rate, or the number of new cases of Sjogren's Syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.


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