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Diseases » Summitt syndrome » Prevalence

Prevalence and Incidence of Summitt syndrome

Summitt syndrome: Rare Disease

Summitt syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Summitt syndrome, or a subtype of Summitt syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Summitt syndrome as a "rare disease". More information about Summitt syndrome is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Summitt syndrome usually refers to the estimated population of people who are managing Summitt syndrome at any given time. The term 'incidence' of Summitt syndrome refers to the annual diagnosis rate, or the number of new cases of Summitt syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.


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