Prevalence and Incidence of Townes-Brocks Syndrome
Townes-Brocks Syndrome: Rare Disease
Townes-Brocks Syndrome is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Townes-Brocks Syndrome, or a subtype of Townes-Brocks Syndrome,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Townes-Brocks Syndrome as a "rare disease".
More information about Townes-Brocks Syndrome is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of Townes-Brocks Syndrome usually refers to the estimated population
of people who are managing Townes-Brocks Syndrome at any given time.
The term 'incidence' of Townes-Brocks Syndrome refers to the annual diagnosis rate,
or the number of new cases of Townes-Brocks Syndrome diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.