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Prevalence and Incidence of Toxic epidermal necrolysis

Toxic epidermal necrolysis: Rare Disease

Toxic epidermal necrolysis is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Toxic epidermal necrolysis, or a subtype of Toxic epidermal necrolysis, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Toxic epidermal necrolysis as a "rare disease". More information about Toxic epidermal necrolysis is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Toxic epidermal necrolysis usually refers to the estimated population of people who are managing Toxic epidermal necrolysis at any given time. The term 'incidence' of Toxic epidermal necrolysis refers to the annual diagnosis rate, or the number of new cases of Toxic epidermal necrolysis diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.


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