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Prevalence and Incidence of Treacher-Collins Syndrome

Prevalance of Treacher-Collins Syndrome:

estimated 1 per 50,000 people suffer from Treacher Collins syndrome, Genetics Home Reference website ... see also overview of Treacher-Collins Syndrome.

Prevalance Rate:

approx 1 in 50,000 or 0.00% or 5,440 people in USA [Source statistic for calcuation: "estimated 1 per 50,000 people suffer from Treacher Collins syndrome, Genetics Home Reference website" -- see also general information about data sources]

Treacher-Collins Syndrome: Rare Disease

Treacher-Collins Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Treacher-Collins Syndrome, or a subtype of Treacher-Collins Syndrome, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Treacher-Collins Syndrome as a "rare disease". More information about Treacher-Collins Syndrome is available from Orphanet

About prevalence and incidence statistics:

The term 'prevalence' of Treacher-Collins Syndrome usually refers to the estimated population of people who are managing Treacher-Collins Syndrome at any given time. The term 'incidence' of Treacher-Collins Syndrome refers to the annual diagnosis rate, or the number of new cases of Treacher-Collins Syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.


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