Prevalence and Incidence of Treacher-Collins Syndrome
Prevalance of Treacher-Collins Syndrome:
estimated 1 per 50,000 people suffer from Treacher Collins syndrome, Genetics Home Reference website ... see also overview of Treacher-Collins Syndrome.
approx 1 in 50,000 or 0.00% or 5,440 people in USA [Source statistic for calcuation: "estimated 1 per 50,000 people suffer from Treacher Collins syndrome, Genetics Home Reference website" -- see also general information about data sources]
Treacher-Collins Syndrome: Rare Disease
Treacher-Collins Syndrome is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Treacher-Collins Syndrome, or a subtype of Treacher-Collins Syndrome,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Treacher-Collins Syndrome as a "rare disease".
More information about Treacher-Collins Syndrome is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of Treacher-Collins Syndrome usually refers to the estimated population
of people who are managing Treacher-Collins Syndrome at any given time.
The term 'incidence' of Treacher-Collins Syndrome refers to the annual diagnosis rate,
or the number of new cases of Treacher-Collins Syndrome diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.