Prevalence and Incidence of Tuberous sclerosis
Prevalance of Tuberous sclerosis:
less than 1 in 10,000 ... see also overview of Tuberous sclerosis.
approx 1 in 10,000 or 0.01% or 27,200 people in USA [Source statistic for calcuation: "less than 1 in 10,000" -- see also general information about data sources]
Tuberous sclerosis: Rare Disease
Tuberous sclerosis is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Tuberous sclerosis, or a subtype of Tuberous sclerosis,
affects less than 200,000 people in the US population.
Ophanet, who are a consortium of European partners,
currently defines a condition rare when if affects 1 person per 2,000.
They list Tuberous sclerosis as a "rare disease".
More information about Tuberous sclerosis is available from Orphanet
About prevalence and incidence statistics:
The term 'prevalence' of Tuberous sclerosis usually refers to the estimated population
of people who are managing Tuberous sclerosis at any given time.
The term 'incidence' of Tuberous sclerosis refers to the annual diagnosis rate,
or the number of new cases of Tuberous sclerosis diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.