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Prevalence and Incidence of Twin-Twin Transfusion Syndrome

Twin-Twin Transfusion Syndrome: Rare Disease

Twin-Twin Transfusion Syndrome is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Twin-Twin Transfusion Syndrome, or a subtype of Twin-Twin Transfusion Syndrome, affects less than 200,000 people in the US population.

About prevalence and incidence statistics:

The term 'prevalence' of Twin-Twin Transfusion Syndrome usually refers to the estimated population of people who are managing Twin-Twin Transfusion Syndrome at any given time. The term 'incidence' of Twin-Twin Transfusion Syndrome refers to the annual diagnosis rate, or the number of new cases of Twin-Twin Transfusion Syndrome diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.


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