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Diseases » Von Willebrand disease » Prevalence

Prevalence and Incidence of Von Willebrand disease

Prevalance of Von Willebrand disease:

estimated 3 million mostly undiagnosed ... see also overview of Von Willebrand disease.

Prevalance Rate:

approx 1 in 90 or 1.10% or 3 million people in USA [Source statistic for calcuation: "estimated 3 million mostly undiagnosed" -- see also general information about data sources]

Von Willebrand disease: Rare Disease

Von Willebrand disease is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Von Willebrand disease, or a subtype of Von Willebrand disease, affects less than 200,000 people in the US population.

Ophanet, who are a consortium of European partners, currently defines a condition rare when if affects 1 person per 2,000. They list Von Willebrand disease as a "rare disease". More information about Von Willebrand disease is available from Orphanet

Undiagnosed prevalence of Von Willebrand disease:

estimated 1 million undiagnosed US women with Von Willebrand disease ... see also misdiagnosis of Von Willebrand disease.

Undiagnosed prevalence rate:

approx 1 in 272 or 0.37% or 1 million people in USA [about data] ... Note: this rate calculation uses the following statistic: estimated 1 million undiagnosed US women with Von Willebrand disease

About prevalence and incidence statistics:

The term 'prevalence' of Von Willebrand disease usually refers to the estimated population of people who are managing Von Willebrand disease at any given time. The term 'incidence' of Von Willebrand disease refers to the annual diagnosis rate, or the number of new cases of Von Willebrand disease diagnosed each year. Hence, these two statistics types can differ: a short-lived disease like flu can have high annual incidence but low prevalence, but a life-long disease like diabetes has a low annual incidence but high prevalence. For more information see about prevalence and incidence statistics.


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